by Emma Rose Rowan Public Library
In November of 2012 a boy
was brought into the world by ecstatic parents, Nathan and Brittany. The newborn
was named Braydon Jude and immediately began stealing the hearts of everyone he
met. While in the hospital awaiting the results from the standard newborn
screenings, Nathan stroked his first-born’s wrinkly forehead and muttered, “I
can’t wait until you’re big enough to play Legos with me.” The test results
came back. Braydon was born jaundiced, was not gaining weight, and had tested
positive for cystic fibrosis.
One
week later, Nathan and Brittany brought Braydon home and began learning
everything they could about CF while also adjusting to the typical stresses and
excitements of becoming new parents. They learned that CF is a complex disease
and that its severity can vary widely.
Brittany was ready to
utilize all resources to do whatever it took to keep her son happy and healthy.
She made all of his meals at home, she gave him breathing treatments twice
everyday, she gave him his medicine at each meal and held him close, drying his
tears when he had to have blood drawn and procedures done to monitor his
condition every three months at Levine’s Children’s Hospital in Charlotte, NC.
Due to Brittany and
Nathan’s diligent care, Braydon is now a strong, healthy, energetic five-year-old.
He knows the importance of his daily routine of medicine and treatments and
rarely complains. Each morning and night Braydon undergoes a breathing
treatment while wearing a special vest that vibrates his chest to ensure that
the medicine helps break up any mucus build-up. His daily routine also includes
taking pancreatic enzymes with every meal to ensure his pancreas is able to
process fat and he is able to maintain a healthy weight. One of Braydon’s
favorite routines is his weekly trip to the East Branch of Rowan Public Library
with his mimi.
Braydon knows more
about the human anatomy than most children his age because of his experiences
in and out of doctor’s offices. He has been known to teach educated adults
about the human digestive system, stating “Food goes in your mouth, it goes
down your throat and down into your belly. It goes in your small intestine and
your large intestine and then you poop it out!”
Brittany has been a
huge advocate for her son by raising money and awareness for the Cystic
Fibrosis Foundation. She has donated her birthdays, organized teams to walk in
the Great Strides events in Concord, and contributes whenever possible to
others who support CF treatment research. Please visit www.cff.org/Charlotte to see how you can contribute too.
When asked what message
she would like to share with the community on the topic of CF, Brittany
responded this way:
Even though it can be scary to hear someone has
cystic fibrosis, they should not be treated any differently. Most people with
CF are still able to do everything just like anyone else, like play sports. Now
that the medicine is getting better and easier and the life expectancy is much
longer, there is no reason not to be hopeful, optimistic and positive. It’s
important to do what you can to lead a normal life and be happy with all of the
time together you have.
Being a new parent can
be scary, even without any medical complications, but if knowledge is power,
then Rowan Public Library is one of the most powerful resources in this area
for new parents. RPL houses thousands of resources specifically on the topic of
parenting, hundreds of which are available online and hundreds in video format.
Have you gotten a
spooky diagnosis? RPL provides patrons with access to health and wellness
resources through NC LIVE completely free! Browse databases such as KidsHealth,
HealthFinder, MayoClinic, The Family Health Database, to use information to
fight fear.
Braydon’s positivity,
intelligence and sense of humor have been a joy and blessing to the East Branch.
He is excited to begin kindergarten this fall and is now big enough to play
Legos with his father. He also plays Legos at Rowan Public Library’s Lego Free-Play,
which will resume this fall.
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